Alzheimer's Disease International (ADI) is the worldwide federation of Alzheimer associations. Our 78 members are the leading representatives in their countries of people with Alzheimer's disease and related dementias and their families. The associations provide information and services - such as support groups, helplines and sometimes respite care - at the local and national levels, and advocate for the needs and rights of the people with the disease. The more emerged associations are putting an increased effort into funding basic, clinical and psychosocial dementia research. Alzheimer's associations in Australia, Canada, France, the Netherlands, the USA and the UK reported spending of $1 million or more on research grants in the year 2011.
The main objectives of ADI are making dementia a global health priority, strengthening and supporting its member associations, and raising global awareness about the disease. A number of activities are carried out to achieve these objectives, including an annual international conference and the Alzheimer University training course. ADI has been in official relations with the World Health Organization since 1996 and with the United Nations since 2012.
To enhance global public policy on dementia, ADI has released reports on the global prevalence of dementia (World Alzheimer Report 2009), the economic cost of dementia (World Alzheimer Report 2010) and the benefits of early diagnosis and intervention (World Alzheimer Report 2011). ADI worked with the World Health Organization on the report Dementia: A Public Health Priority that was launched in Geneva in April 2012 . This report confirms previous data and provides an overview for all aspects of the disease. The report recommends that every country should develop a national Alzheimer and dementia plan, and gives a framework for action. This framework includes the following stages .
The framework initially involves advocacy and awareness raising. Advocacy targets governments at all levels to encourage policies that will improve dementia care and services. Awareness raising focuses on the general public, as well as families and healthcare professionals, to improve their understanding of dementia and to change attitudes and practices.
Developing and implementing dementia policies and plans should be carried out across governmental departments on all medical, social, legal and economic aspects of the disease. Plans should be put together and implemented in collaboration with academia, nongovernmental organisations, professional organisations and governmental departments and agencies.
The third stage of the framework concerns health and social system strengthening. It is essential that health and social systems are equipped to provide the range of care and services that people with dementia and family caregivers need. This includes capacity-building and education among healthcare professionals and investments in health information systems.
Finally, research and evaluation should complete the framework. Each country should develop a research agenda, and there is need for international collaboration and public/private partnerships to make progress in basic science and finding new and more effective treatments. The agenda will be multidisciplinary. Countries also need to monitor the course of the dementia epidemic for changes in prevalence and incidence that might indicate success or failure of measures.
ADI wants to work with its member organisations and other international nongovernmental organisations to make this framework happen.
A number of countries now have Alzheimer or dementia plans - for instance, Australia, South Korea, France, the UK, Norway and Denmark. The USA is working on a plan and has published a draft. There are also policy initiatives in Mexico and India. These plans are promising and other countries can learn from the first experiences. From the data, it is clear that we have no time to lose!