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Table 1 Prescreening database variable description

From: Centralizing prescreening data collection to inform data-driven approaches to clinical trial recruitment

Variable

Age

Education

Race

Ethnicity

Occupation

Recruitment Source

Eligibility

Field Type

Free text, integers only

Free text, integers only

Checkbox

Checkbox

Radio button

Checkbox

Yes/No, checkbox, free text

Description

User enters participant’s age

User enters participant’s years of education

• American Indian/Alaska Native

• Asian

 ◦ Asian Indian

 ◦ Chinese

 ◦ Filipino

 ◦ Japanese

 ◦ Korean

 ◦ Vietnamese

 ◦ Other Asian

 ◦ Unknown or Not Reported

• Black or African American

• Hawaiian/other Pacific Islander

• Caucasian or White

• Other

• Unknown/Not Reported

• Not Hispanic, Latino/a, or Spanish origin

• Yes, Mexican, Mexican American, Chicano/a

• Yes, Puerto Rican

• Yes, Cuban

• Yes, other Hispanic, Latino/a, or Spanish origin

• Unknown/Not Reported

• Professional and Higher Executive Occupations, Chief Executives

• Middle Professional Occupations/Small Business Owners

• Managers

• Support Personnel, Drafters, Technicians

• Arts Design, Entertainment, Sports Occupations- Non-professional

• Aids, Assistants, Clerks

• Laborers

• Other/Never Employed

National Campaign

 ◦ Advertising

 ◦ Newspaper

 ◦ TV/Radio

 ◦ Other

Social Media

 ◦ Facebook

 ◦ Twitter

 ◦ Instagram

 ◦ YouTube

 ◦ Other

Referral

 ◦ Clinician at site

 ◦ Community clinician

 ◦ Community partner

 ◦ Participant

 ◦ NACC/other obs.

 ◦ Other

Registry

 ◦ Local

 ◦ GeneMatch

 ◦ APT Webstudy

 ◦ Brain Health

 ◦ TrialMatch

 ◦ Other

Local Campaign

 ◦ Previous participant

 ◦ Local TV

 ◦ Local Radio

 ◦ Local theatre

 ◦ Outreach Event

 ◦ Other

Website

 ◦ Site website

 ◦ AHEAD website

 ◦ Clinicaltrials.gov

 ◦ Other

 ◦ TV/Radio

Other

• Yes

 ◦ Study ID#

• No

 ◦ No longer interested

 ◦ No Study Partner

 ◦ MCI/AD Dx

 ◦ Medical exclusion (other than MCI/AD)

 ◦ No longer interested (concerns about investigational treatment

 ◦ No longer interested (concerns about radiation)

 ◦ Contraindications to MRI scanning

• Other

Variable

Sex

Zip Code

Field Type

Radio button

Free text, 5-digit integer

Description

• Male

• Female

• Other

User enters participant’s 5-digit zip code