Table 4 Summary table of answers to the multiresponse question “what are the most important factors when considering to enroll again?”, stratified per diagnostic group
What are the most important factors when considering to enrol again? | Overall | Alzheimer’s disease | Mild Cognitive impairment | Cognitively normal | ||||
|---|---|---|---|---|---|---|---|---|
N | % (ntotal=71) | n | % (nAD=33) | n | % (nMCI=19) | n | % (nCN=19) | |
Sharing personal results | 57 | 80.3% | 24 | 72.7% | 16 | 84.2% | 17 | 89.5% |
Sharing research results | 52 | 73.2% | 22 | 66.7% | 16 | 84.2% | 14 | 73.7% |
Possibility to enrol in a new trial | 45 | 63.4% | 24 | 72.7% | 13 | 68.4% | 8 | 42.1% |
The same specialist each visit | 41 | 57.7% | 18 | 54.5% | 13 | 68.4% | 10 | 52.6% |
Reputation research center | 34 | 47.9% | 16 | 48.5% | 10 | 52.6% | 8 | 42.1% |
Number of visits to center per month | 11 | 15.5% | 7 | 21.2% | 4 | 21.1% | 0 | 0% |
Side effects | 10 | 14.1% | 3 | 9.1% | 4 | 21.1% | 3 | 15.8% |
Distance to study center | 8 | 11.3% | 4 | 12.1% | 3 | 15.8% | 1 | 5.3% |
Chance to receive placebo | 8 | 11.3% | 4 | 12.1% | 4 | 21.1% | 0 | 0% |
To receive payment | 4 | 5.6% | 2 | 6.1% | 2 | 10.5% | 0 | 0% |
Duration of study visit | 4 | 5.6% | 3 | 9.1% | 1 | 5.3% | 0 | 0% |
Privacy | 3 | 4.2% | 1 | 3.0% | 2 | 10.5% | 0 | 0% |