Table 4 Symptoms causing caregivers most distress and symptoms that caregivers would most likely prioritize for treatment

Symptom domain

n (%)

Symptom domain

n (%)

Psychiatric symptoms

57 (21.7)

Psychiatric symptoms

54 (20.5)

Cognitive impairment

55 (20.9)

Parkinsonism

46 (17.5)

Parkinsonism

34 (12.9)

Cognitive impairment

42 (16.0)

Autonomic dysfunction

18 (6.8)

Autonomic dysfunction

17 (6.5)

Sleep-related disorders

14 (5.3)

Sleep-related disorders

14 (5.3)

Eating behavior-related problems

5 (1.9)

Eating behavior-related problems

3 (1.1)

Sensory disorders

0 (0.0)

Sensory disorders

1 (0.4)

Symptom

n (%)

Symptom

n (%)

Memory impairment

25 (9.5)

Memory impairment

24 (9.1)

Visual hallucinations

20 (7.6)

Visual hallucinations

16 (6.1)

Agitation/aggression

14 (5.3)

Bradykinesia/akinesia

15 (5.7)

Bradykinesia/akinesia

11 (4.2)

Agitation/aggression

11 (4.2)

Executive dysfunction

11 (4.2)

Delusions

11 (4.2)

Delusions

10 (3.8)

Constipation

10 (3.8)

Constipation

8 (3.0)

Postural instability

7 (2.7)

Fluctuating cognition

7 (2.7)

Rapid eye movement sleep behavior disorder

7 (2.7)

Nighttime dysuria

7 (2.7)

Executive dysfunction

6 (2.3)

Other cognitive impairment

6 (2.3)

Gait disturbance

6 (2.3)

Postural instability

6 (2.3)

Other cognitive impairment

5 (1.9)

Rapid eye movement sleep behavior disorder

6 (2.3)

Aberrant motor behavior

4 (1.5)

Gait disturbance

4 (1.5)

Abnormal posture

4 (1.5)

Hallucinations other than visual hallucinations

4 (1.5)

Action tremor

4 (1.5)

Aberrant motor behavior

3 (1.1)

Depression

4 (1.5)

Attention dysfunction

3 (1.1)

Fall

4 (1.5)

Nighttime sleep disorder

3 (1.1)

Rigidity

4 (1.5)

Other psychiatric symptoms

3 (1.1)

Daytime somnolence

3 (1.1)

Rigidity

3 (1.1)

Fluctuating cognition

3 (1.1)

Abnormal posture

2 (0.8)

Hallucinations other than visual hallucinations

3 (1.1)

Action tremor

2 (0.8)

Nighttime dysuria

3 (1.1)

Daytime somnolence

2 (0.8)

Attention dysfunction

2 (0.8)

Depression

2 (0.8)

Nighttime sleep disorder

2 (0.8)

Fall

2 (0.8)

Other psychiatric symptoms

2 (0.8)

Loss of appetite

2 (0.8)

Orthostatic hypotension

2 (0.8)

Restless legs syndrome

2 (0.8)

Restless legs syndrome

2 (0.8)

Salivation

2 (0.8)

Anxiety

1 (0.4)

Visuospatial dysfunction

2 (0.8)

Apathy

1 (0.4)

Weight gain

2 (0.8)

Daytime dysuria

1 (0.4)

Anxiety

1 (0.4)

Delirium

1 (0.4)

Disorientation

1 (0.4)

Disorientation

1 (0.4)

Dizziness

1 (0.4)

Dysosmia

1 (0.4)

Freezing of gait

1 (0.4)

Food refusal

1 (0.4)

Increase in appetite

1 (0.4)

Freezing of gait

1 (0.4)

Orthostatic hypotension

1 (0.4)

Increase in appetite

1 (0.4)

Rest tremor

1 (0.4)

Rest tremor

1 (0.4)

Sudden sleep

1 (0.4)

Syncope

1 (0.4)

Syncope

1 (0.4)

Visuospatial dysfunction

1 (0.4)

Apathy

0 (0.0)

Weight gain

1 (0.4)

Day–night reversal

0 (0.0)

Day–night reversal

0 (0.0)

Daytime dysuria

0 (0.0)

Disinhibition

0 (0.0)

Delirium

0 (0.0)

Disturbance of sweating

0 (0.0)

Disinhibition

0 (0.0)

Dizziness

0 (0.0)

Disturbance of sweating

0 (0.0)

Dysphagia

0 (0.0)

Dysosmia

0 (0.0)

Eating non-edible things

0 (0.0)

Dysphagia

0 (0.0)

Loss of appetite

0 (0.0)

Eating non-edible things

0 (0.0)

Negativism

0 (0.0)

Food refusal

0 (0.0)

Periodic limb movement disorder

0 (0.0)

Negativism

0 (0.0)

Salivation

0 (0.0)

Periodic limb movement disorder

0 (0.0)

Sudden sleep

0 (0.0)

Unbalanced diet

0 (0.0)

Unbalanced diet

0 (0.0)

Weight loss

0 (0.0)

Weight loss

0 (0.0)

Invalid answer

80 (30.4)

Invalid answer

86 (32.7)

 Multiple answers

65 (24.7)

 Multiple answers

81 (30.8)

 Do not know

10 (3.8)

 Do not know

4 (1.5)

 Unanswered

5 (1.9)

 Unanswered

1 (0.4)