Table 2 Background characteristics of patients, caregivers, and physicians
Patients (N = 263) | Caregivers (N = 263) | Physicians (N = 38) | |||
|---|---|---|---|---|---|
Age (y) | 79.3 ± 6.7 | Age (y) | 64.8 ± 12.8 | Age (y) | 51.1 ± 7.8 |
Sex (M/F) | 128/135 | Sex (M/F) | 72/191 | Sex (M/F) | 32/6 |
DLB duration (m) | 30.4 ± 29.7 (n = 260) | Relationship with patient | Affiliated clinical department | ||
Psychiatry | 26 (69.4) | ||||
Education history (y) | 11.8 ± 2.8 (n = 242) | Spouse | 139 (52.9) | Neurology | 6 (15.8) |
Institute | Father or mother | 0 (0.0) | Geriatric medicine | 4 (10.5) | |
University hospital | 123 (46.8) | Sibling | 4 (1.5) | Neurosurgery | 1 (2.6) |
Non-university hospital | 51 (19.4) | Son or daughter | 104 (39.5) | Others | 1 (2.6) |
Clinic | 89 (33.8) | Son- or daughter-in-law | 12 (4.6) | Number of patients with DLB treated by the physician | |
Clinical department | Grandchild | 2 (0.8) | Less than 10 | 0 (0.0) | |
Psychiatry | 134 (51.0) | Care provider | 2 (0.8) | Between 10 and 30 | 5 (13.2) |
Neurology | 49 (18.6) | Living with the patient, yes | 211 (80.2) | Between 30 and 100 | 12 (31.6) |
Geriatric medicine | 65 (24.7) | Time spent with the patient (h/d) | 14.5 ± 8.9 (n = 258) | More than 100 | 21 (55.3) |
Neurosurgery | 1 (0.4) | Presence of assistant caregiver, yes | 91 (34.6) | Inclusion criteria | |
Others | 14 (5.3) | Working, yes | 111 (42.2) | 1) A representative organizer or an organizer of Dementia with Lewy Bodies Society Japan | 8 (15.8) |
Living alone, yes | 25 (10.2) (n = 245) | J-ZBI_8 total score | 8.3 ± 6.3 | ||
MMSE-J score | 20.9 ± 5.9 | J-ZBI_8 personal strain | 6.0 ± 4.5 | 2) An advisor or cooperating physician in the DLB Support Network in Japan | 12 (31.6) |
≤19 (moderate cognitive impairment) | 95 (36.1) | ||||
≥20 (mild cognitive impairment) | 168 (63.9) | ||||
NPI-12 total score | 16.0 ± 16.6 (n = 261) | J-ZBI_8 role strain | 2.3 ± 2.7 | 3) An author or co-author of a review article or research paper on DLB | 30 (78.9) |
MDS-UPDRS Part III total score | 23.8 ± 20.6 (n = 261) | SF-8 PCS | 48.7 ± 7.3 (n = 254) | 4) Any physician affiliated with the same department at the facility where the physician mentioned in (1), (2), or (3) works | 0 (0.0) |
MDS-UPDRS Part II total score | 11.3 ± 10.8 (n = 262) | SF-8 MCS | 47.9 ± 6.8 (n = 254) | ||
CFI | 2.3 ± 3.0 | ||||
SF-8 PCS | 45.4 ± 8.2 (n = 257) | ||||
SF-8 MCS | 48.7 ± 7.0 (n = 257) | ||||