From: Research attitudes in families of individuals with Down syndrome: importance for clinical trials
Demographic | Freq (%) or mean (SD) |
---|---|
Sex | |
Female | 880 (87.8) |
Male | 122 (12.2) |
Age, mean (SD) | 53.3 (12.1) |
Age categories | |
< 30 | 19 (1.9) |
30–39 | 122 (12.2) |
40–49 | 246 (24.6) |
50–59 | 303 (30.3) |
60–69 | 219 (21.9) |
70+ | 92 (9.2) |
Race | |
White | 875 (94.9) |
Other | 18 (2.0) |
Black or African-American | 14 (1.5) |
Asian | 13 (1.4) |
American Indian or Alaskan Native | 2 (0.2) |
Ethnicity | |
Hispanic | 42 (4.3) |
Non-Hispanic | 927 (95.7) |
Relationship to person with Down syndrome | |
Parent | 941 (94.5) |
Sibling (including full, half or step) | 45 (4.5) |
Guardian or conservator | 4 (0.4) |
Other | 6 (0.6) |
Primary caregiver | |
No | 111 (11.1) |
Yes | 887 (88.9) |
Education | |
Years, mean (SD) | 17.8 (3.3) |
High school | 42 (4.3) |
Some college or more | 945 (95.7) |