Table 4 Patients’ experienced disadvantages 2 weeks and 6 months after amyloid positron emission tomography scan result disclosure

Two weeks after disclosure:

1. Emotional difficulties

2. Worse situation than initially expected

3. Patronized by partner/children

4. Question: Will my symptoms become any worse? If so, when?

Six months after disclosure:

Similarities:

1. Emotional difficulties

2. Question: Will my symptoms become any worse? If so, when?

Newly mentioned disadvantages:

1. Driver’s license

Not mentioned after 6 months:

1. Worse situation than initially expected

2. Patronized by partner/children

Two weeks after disclosure:

1. No access to all clinical trial data

2. Question: What is causing my memory complaints?

Six months after disclosure:

Similarities:

1. Question: What is causing my memory complaints?

Newly mentioned disadvantages:

1. Wrong diagnosis?

Not mentioned after 6 months:

1. No access to all clinical trial data