Table 2 Reasons to inform or not to inform others
Reasons to inform others (by majority of amyloid-positive patients) | Reasons not to inform others (by large group of amyloid-negative patients) |
|---|---|
• Other people would know what is going on with them. • Other people can help the patient and take the patient’s situation into account. • Sooner or later, other people will notice what is going on with the patient. • Because it can do the patient well to talk to other people who can understand their problem. | • The decision was made together with the partner before the disclosure of the amyloid PET scan result about whom they would inform once the result was known. • Once you inform others, you have no control of the information. This could result in people who start to perceive the patient differently or that others start to generalize that the patient already has dementia. • Some people do not know how to respond to bad news. In particular, for younger people, it might be difficult to understand the memory complaints of the participant. • The amyloid PET scan result is your personal and thus private information. • It is uninformative news to tell owing to the negative amyloid PET scan result. If they had received a positive test result, they would have informed their inner circle of family and friends. |