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Table 3 Differences between explanations given to older adults and those given to younger adults

From: Linking a research register to clinical records in older adults’ mental health services: a mixed-methods study

Item Older adults (%) Younger adults (using psychosis services) (%) Significance
Having an (electronic) health record 42 64 χ = 4, df = 1, P = 0.07
Benefits of research 85 80 χ = 0.29, df = 1, P = 0.78
Types of research 15 55 χ = 13, df = 1, P <0.001
Personalised example of research 50 49 χ = 0, df = 1, P = 1
Researchers have been ‘approved’ (by regulatory bodies) 8 52 χ = 16.5, df = 1, P <0.001
Researchers’ confidentiality 46 36 χ = 9, df = 1, P = 0.37
Researchers will identify you from the EHR 65 62 χ = 0.1, df = 1. P = 0.82
Researchers may contact you in future 85 94 χ = 2.5, df = 1, P = 0.21
C4C is voluntary 46 85 χ = 17.6, df = 1, P <0.001
Future studies are voluntary 58 61 χ = 0.09, df = 1, P = 0.82
Service user/carer can un-join the register (change their mind) 38 70 χ = 8.9, df = 1, P <0.001
Decision will not affect care 18 33 χ = 3.1, df = 1, P = 0.09
Can agree contact arrangements; that is, what/when/how contacted 31 77 χ = 23.7, df = 1, P <0.001
Ask whether they wish to join the register 85 85 χ = 0, df = 1, P = 0.1
Questions and concerns 54 65 χ = 1.1, df = 1, P = 0.36
Who to contact for further information 19 59 χ = 13.1, df = 1, P <0.001
  1. C4C, Consent for Contact; df, degrees of freedom; EHR, Electronic Health Record. Bold data are significant.