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Table 3 Differences between explanations given to older adults and those given to younger adults

From: Linking a research register to clinical records in older adults’ mental health services: a mixed-methods study

Item

Older adults (%)

Younger adults (using psychosis services) (%)

Significance

Having an (electronic) health record

42

64

χ = 4, df = 1, P = 0.07

Benefits of research

85

80

χ = 0.29, df = 1, P = 0.78

Types of research

15

55

χ = 13, df = 1, P <0.001

Personalised example of research

50

49

χ = 0, df = 1, P = 1

Researchers have been ‘approved’ (by regulatory bodies)

8

52

χ = 16.5, df = 1, P <0.001

Researchers’ confidentiality

46

36

χ = 9, df = 1, P = 0.37

Researchers will identify you from the EHR

65

62

χ = 0.1, df = 1. P = 0.82

Researchers may contact you in future

85

94

χ = 2.5, df = 1, P = 0.21

C4C is voluntary

46

85

χ = 17.6, df = 1, P <0.001

Future studies are voluntary

58

61

χ = 0.09, df = 1, P = 0.82

Service user/carer can un-join the register (change their mind)

38

70

χ = 8.9, df = 1, P <0.001

Decision will not affect care

18

33

χ = 3.1, df = 1, P = 0.09

Can agree contact arrangements; that is, what/when/how contacted

31

77

χ = 23.7, df = 1, P <0.001

Ask whether they wish to join the register

85

85

χ = 0, df = 1, P = 0.1

Questions and concerns

54

65

χ = 1.1, df = 1, P = 0.36

Who to contact for further information

19

59

χ = 13.1, df = 1, P <0.001

  1. C4C, Consent for Contact; df, degrees of freedom; EHR, Electronic Health Record. Bold data are significant.