|
Having an (electronic) health record
|
11
|
0
|
0
|
|
Benefits of research
|
22
|
0
|
0
|
|
Types of research
|
4
|
0
|
0
|
|
Personalised example of research
|
13
|
0
|
3
|
|
Researchers have been ‘approved’ (by regulatory bodies)
|
2
|
0
|
0
|
|
Researchers’ confidentiality
|
17
|
1
|
0
|
|
Researchers will identify you from the EHR
|
12
|
0
|
4
|
|
Researchers may contact you in future
|
22
|
4
|
7
|
|
C4C is voluntary
|
12
|
0
|
4
|
|
Future studies are voluntary
a
|
15
|
0
|
5
|
|
Service user/carer can un-join the register (change their mind)
a
|
10
|
3
|
3
|
|
Decision will not affect care
|
4
|
1
|
2
|
|
Can agree contact arrangements; that is, what/when/how contacted
b
|
8
|
2
|
3
|
|
Ask whether they wish to join the register
|
22
|
6
|
4
|
|
Questions and concerns
|
14
|
1
|
0
|
|
Who to contact for further information
|
5
|
2
|
5
|
