Table 1 Content of consultations between clinicians and service users/carers
Item | Clinician mentioned | Service user mentioned in consultation to researcher | Carer mentioned in consultation to researcher |
|---|---|---|---|
(total potential n = 26) | (total potential n = 26) | (total potential n = 20) | |
Having an (electronic) health record | 11 | 0 | 0 |
Benefits of research | 22 | 0 | 0 |
Types of research | 4 | 0 | 0 |
Personalised example of research | 13 | 0 | 3 |
Researchers have been ‘approved’ (by regulatory bodies) | 2 | 0 | 0 |
Researchers’ confidentiality | 17 | 1 | 0 |
Researchers will identify you from the EHR | 12 | 0 | 4 |
Researchers may contact you in future | 22 | 4 | 7 |
C4C is voluntary | 12 | 0 | 4 |
Future studies are voluntary a | 15 | 0 | 5 |
Service user/carer can un-join the register (change their mind) a | 10 | 3 | 3 |
Decision will not affect care | 4 | 1 | 2 |
Can agree contact arrangements; that is, what/when/how contacted b | 8 | 2 | 3 |
Ask whether they wish to join the register | 22 | 6 | 4 |
Questions and concerns | 14 | 1 | 0 |
Who to contact for further information | 5 | 2 | 5 |