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Table 1 Content of consultations between clinicians and service users/carers

From: Linking a research register to clinical records in older adults’ mental health services: a mixed-methods study

Item Clinician mentioned Service user mentioned in consultation to researcher Carer mentioned in consultation to researcher
(total potential n= 26) (total potential n= 26) (total potential n= 20)
Having an (electronic) health record 11 0 0
Benefits of research 22 0 0
Types of research 4 0 0
Personalised example of research 13 0 3
Researchers have been ‘approved’ (by regulatory bodies) 2 0 0
Researchers’ confidentiality 17 1 0
Researchers will identify you from the EHR 12 0 4
Researchers may contact you in future 22 4 7
C4C is voluntary 12 0 4
Future studies are voluntary a 15 0 5
Service user/carer can un-join the register (change their mind) a 10 3 3
Decision will not affect care 4 1 2
Can agree contact arrangements; that is, what/when/how contacted b 8 2 3
Ask whether they wish to join the register 22 6 4
Questions and concerns 14 1 0
Who to contact for further information 5 2 5
  1. C4C, Consent for Contact; EHR, Electronic Health Record. Bold data are significant. aMarked a significant difference from whether younger adults joined a similar register. bMarked a significant difference from whether younger adults and older adults joined the register.